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Author and campaigner Vicky Phelan has taken to social media to ask why, once again, the women of Ireland fighting cancer are continually denied access to new cancer drugs and treatments which would enable them to live and prolong their lives.
Busy promoting her autobiography while still undergoing treatment for her own cervical cancer and raising her family, the mum-of-two continues to be an advocate for the women of Ireland in any way she can. This weekend, she posted on Twitter her dismay that yet another drug for cancer – readily available in the UK – is not available in Ireland and urged the Government to start taking action to ensure that new drugs are easily accessible to those whose lives depend on them.
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She explained that she met a young mother of four at a book signing in Cork, who has stage four ovarian cancer. The woman was asking for advice about other treatments and Vicky explained that, while doing research, that she came across a drug that could help, but was not available here, for “cost-effective” reasons.
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“I started researching options for advanced/recurrent ovarian cancer. I came across a drug called Niraparib. My research this morning coincided with a tweet from a good friend working in Oncology who is currently at #ESMO2019 in Barcelona where results from a number of studies of Niraparib show that this drug is having great results in ovarian cancer. It is approved for ALL women with recurrent OC [Overian Cancer] in the UK and Northern Ireland,” she wrote.
It is NOT approved for use here in Ireland because it is not deemed “cost-effective” and the drug appears to be more effective with gBRCAmut disease compared with those with no mutations. This, despite the fact that this drug has been approved in the UK for and I quote, “women with recurrent ovarian cancer on a mass scale – regardless of whether they carry a BRCA mutation.”
“What do the women of Ireland have to do to get access to new cancer drugs to allow them to prolong their lives and spend more time with their children?”
“Let’s be clear here. Ovarian (and Cervical) cancer primarily target young women, women who have either been robbed of the opportunity to have children, or, women with VERY young children. WHY are we not doing everything we can to give them more time with their families?” she continued.
She added that if she had not fought for the use of her current treatment drug, her own children would be without their mother, and urged the Women’s Health Taskforce in Ireland to fight for better outcomes for women with gynaecological cancers. And to start, she said, they needed to undergo a “radical listening exercise.”
“The 1st action of the Women’s Health Taskforce is to lead a radical listening exercise. PLEASE, I ask you, Women of Ireland, offer up solutions.”
Read the thread in full below:
Main photo: Vicky Phelan via Twitter
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