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Endometriosis: 10 Things You Need To Know

You might have heard about endometriosis recently as March is Endometriosis Awareness Month worldwide.

Last year, Lena Dunham, one of our favourites, had to take a step back from much of the press work for the new season of Girls from her own struggles with endometriosis, and was hospitalised with an ovarian cyst rupture.

We spoke to the lovely people at the Endometriosis Association of Ireland to find out all we could about endometriosis. There are 1 in 10 women living with endometriosis and the average delay in diagnosis in Ireland is over nine years, so the Endometriosis Association of Ireland have helped us put together this list of 10 Things You Need To Know About Endometriosis to try and reach as many women as possible.

1. You are never too young to have endometriosis – 70% of teenagers with pelvic pain go on to be diagnosed with endometriosis.

2. Severe pain with your period or ovulation is not normal! Not all women with endometriosis have pain; some have pain all throughout their cycle. Pain is the most common symptom.

3. Painful sex is a key symptom of endometriosis and should be investigated. Pain with bowel movements, urination and lower back pain are other signs. Do not suffer in silence.

4. Pregnancy/Hysterectomy/Menopause cannot cure endometriosis. Medical treatments (the pill) cannot remove endometriosis; they can help manage symptoms.

5. Infertility is not inevitable – it may mean that it is more difficult to become pregnant – up to 70% of women go on to have children.

6. Endometriosis is not just painful periods! It is a debilitating, chronic and painful condition that can go misdiagnosed as IBS, PID, STI, psychosomatic for years! The average delay in diagnosis Ireland is over nine years.

7. Endometriosis can only be diagnosed by a laparoscopy; it is a surgical procedure under general anaesthetic where a gynaecologist looks inside the pelvic for endometriosis deposits.

8. Excision surgery offers the best chance of a pain-free life – other forms of surgery or treatments do not have the same success rate and women often experience the recurrence of their symptoms.

9. Repeated surgeries can damage fertility, cause chronic pain and be a further cause of adhesions.  Choose your surgeon wisely, make sure they perform excision surgery and have experience in treating endometriosis.

10. You are not alone! There are 1 in 10 women living with endometriosis, 176 million worldwide! If you know ten women – you know endometriosis. The EAI have a wonderful secret online support group – email [email protected] to join.


The Endometriosis Association of Ireland offers support and information to women in Ireland who are affected by endometriosis. Learn more about them on their website here

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